Marc Wübbenhorst

What is new?


I have been trying out diuretics for some months now. Nobody knows why they help, but they do. Shoot me a message if you want to know more.


You can watch my story in English on DC at the end of this year.


People with rare conditions should support each other. So feel free to join our facebook groups.





With a slightly different view on the things sourrounding him Marc Wübbenorst works at an architect´s office for a decade now. After studiying history and education he used to work at a school for children with disabilities. Beeing involved in school planning and social tailured projects Wübbenhorst now is busy with village and city development.


+ rural and urban development

+ architecture and education

+ regional history and guided city tours

+ history of urban planning

+ languages

+ cultural education

+ public relations and journalism

+ children with special needs



Ask me in

german, platt, friesian, dutch, swedish, spanish, indonesian, french

Medical background


Nephrogenic diabetes insipidus (also known as renal diabetes insipidus) is a form of diabetes insipidus primarily due to pathology of the kidney. This is in contrast to central/neurogenic diabetes insipidus, which is caused by insufficient levels of antidiuretic hormone (ADH, that is, arginine vasopressin or AVP).


Nephrogenic diabetes insipidus is caused by an improper response of the kidney to ADH, leading to a decrease in the ability of the kidney to concentrate the urine by removing free water.



Diabetes insipidus renalis


Marc Wübbenhorst from the Western German city of Bielefeld drinks at least 10 times more water than the recommended daily intake of two litres a day for most people.


The 36-year-old German has suffered from diabetes insipidus since birth. It’s a rare disease – only 60 people in Germany have been diagnosed with it. The condition – which, despite its name, is unrelated to diabetes – is an inability of the sufferer’s body to retain fluids.

These days, Marc Wübbenhorst says he can live with his condition and manages to cope with it with the help of generous doses of humour. "Make the best of it!"



Worldwide Campaign


Since 2017 Marc has been running an outraging worldwide campaign. His goals :

- awareness for nephrogenic diabetes

- connecting people

- supporting, counseling, research

- access to water

fotos: leya parvati, bielefeld



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